|About the Book|
This book is about my mother’s journey -- one she had never expected to take. Similarly, it had been a journey we had taken alongside her. One which had ended with us saying goodbye to our mother here on Earth and thus changing our lives forever.ItMoreThis book is about my mother’s journey -- one she had never expected to take. Similarly, it had been a journey we had taken alongside her. One which had ended with us saying goodbye to our mother here on Earth and thus changing our lives forever.It is my hope that by telling my story, others who are struggling with a parent or relative with dementia … or really any terminal and tragic disease, may find some help in what we went through. While drowning in the struggle it is hard to see that there may ever be light at the end of the tunnel. It’s been ten years since my mother passed away. I can say now, and even a short time after Mama passed, there was hope through the darkness.Honestly, there had been times while taking care of Mama that I’d felt so alone. I’d felt like no one could ever have understood what I had been going through. There had been times when I’d believed that no one could understand what we as a family had been going through.This kind of experience will change you forever. It changes everything from how you lived your daily life to what you believed your limits to be to your relationship with your family members. I even remember having to see my Mama differently- not in a bad way, just different.Living with and traversing the road with dementia needs to be a shared experience because so many today and tomorrow may be traveling the same path. If there is one thing we have learned as caregivers, it’s to help others. And in a way, all of us who have or are going through this painful process, are a kindred group.In this book, I speak as a daughter and caregiver of my mother … my amazing Mama. I’m not a doctor or other medical professional though I am someone who took part in taking care of a parent with dementia. So to this, I can speak well on the trials and tribulations, the lessons and the issues, the questions and ultimately, decisions that needed to be made at the end.I hear from others who are going through some phase of the caregiver process and hear their pain. I can relate to it. I also want to say how fortunate I had been to have had a supportive and loving family of seven brothers and sisters who all did what they could during this time. I believe even today that Mama is looking down on our family from Heaven with a smile at how we had come together during that trying time.Dementia can be such a harsh, inexplicably cruel lot in life to experience. Once dementia enters your life, it is there to stay. And it doesn’t discriminate. It doesn’t care your race, creed, economic status, gender or anything else.The road from first hearing those terrifying words: “your parent has the onset of dementia,” to the inevitable final words, “it’s time,” is a bumpy one. If my story could help anyone, at any place on the path, with questions, emotions, or any other part of the whirlwind trek, I truly hope that it can.Mama’s story celebrated the beautiful woman of faith and courage that she’d been to her children and grandchildren. I’m grateful to be able to see her life this way and not attach the disease to her as the way I’d remembered her. One thing we had learned from the experience was how to look for joy and light in all possible situations.I sincerely hope that this book helps people find some of the answers they are looking for regarding being a caregiver.